The FASD Respect Act needs your support!
What is The FASD Respect Act?
It could just be the legislation that could change the lives of those impacted by Fetal Alcohol Spectrum Disorders!
And it needs your support!
-
FASD is the most common preventable cause of developmental disability. An estimated 4-5% of children in the U.S. have some form of FASD, making it 2.5 times more prevalent than autism spectrum disorder.
-
Fetal alcohol spectrum disorder (FASD) is often overlooked, misdiagnosed, and understudied. Individuals with FASD and their families also face persistent stigma, negative stereotypes and harmful biases, due to public misunderstandings.
-
Less than 10 percent of individuals with FASD have the associated facial features — short palpebral fissures, smooth philtrum and thin upper lip. It is an “invisible disorder.”
-
Many people with FASD experience lifelong functional, behavioral, and mental health difficulties.
Research shows that with the right supports, individuals with FASD can live productive and successful lives. Without diagnosis, understanding, and appropriate supports, individuals may experience less favorable circumstances such as homelessness, incarceration, or death.
FASD MONTHLY SUPPORT SERIES
Are you struggling with the numerous challenges related to FASD? You don’t have to go it alone.
Orchids is pleased to offer monthly virtual support meetings to discuss these challenges and brainstorm potential approaches and solutions in a peer discussion series.
Click here for more details and to register for the next meeting.
Resources
Information and links covering a wide range of FASD-specific topics and world-wide resources.
Education
Print and Web-based training on FASD leading to “FASD-informed Provider” certification.
Get Involved
Support the work. Donate, subscribe, participate, join the board, help us take action, spread the word.
Find Us on YouTube
FASD News
Click here for our full news page.
The Advancing FASD Research, Services, and Prevention Act
On June 24th, the Advancing FASD Research, Services, and Prevention Act, also known as the FASD Respect Act, was introduced to Congress by Senator Lisa Murkowski (R-Alaska) and Representative Betty McCollum (D-Minnesota). If passed, the FASD Respect Act would make...
Update to CDC Disability and Health Data System
The CDC's Disability and Health Data System (DHDS), an online tool that allows users to view state-level data on adults with disabilities, was recently updated to include data from the Behavioral Risk Factor Surveillance System (BRFSS) from 2016, 2017, 2018, and...
New Book: “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities”
Natalie Vecchione and Cindy LaJoy have published a new book, Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities, in which they discuss their experiences homeschooling teenagers with FASD. Vecchione is a co-founder of FASD...
