FASD Support Series

Prevalence rates for FASD are twice as high as those for autism and the need for information about and services for individuals with FASD is great.  Orchids FASD Services of Wisconsin is offering a monthly virtual series to provide:
  • Information and conversation about the challenges you face 
  • Exploration of local resources to meet these challenges and support needs
This series of meetings is held online from 1:00pm – 2:30/3:00pm (central time) the first Friday of each month.  The first hour is both informational and conversational about a specific challenge presented by FASD.  Attendees are invited (this is optional) to join smaller group discussions in a break-out room to continue conversation and sharing on a more personal level.  The intent is to help with the creation of on-going groups that meet more frequently.
 
Help us share this information with anyone who may benefit – family members, caregivers, professionals, and individuals with FASD are all invited to attend!
 

When are the next few meetings?

Here are the upcoming Support Series meetings.  Be sure to mark your calendar and join us!
  • March 5, 2021

  • April 2, 2021

  • May 7, 2021

To download a copy of this flyer to print, send to your friends and colleagues, or post on your social media pages, click here.

How can I join the discussion?

To register and receive your virtual meeting link, fill out this one-time registration form.  If you have any additional questions, email us at FASDSS@orchidsfasdservices.org

Do you have a list of resources from the meetings?

As topics are discussed and resources are shared, we’ll keep an ongoing list. You can view that list here.

What have you talked about in past meetings

Glad you asked!  Click open each date’s section to see.

January 8, 2021
Highlights
 
Resources shared:
  • Peggy shared a number of resources.  See our updated resources list here.

 

Issues shared:
  • Managing either IRIS or Family Care – system is confusing and frustrating

  • Work-related challenges, employer relationships

  • Constant use of cell phone

  • Dealing with anger and frustration in older adults with FASD

  • Self-esteem, grandiosity – realistic expectations by and for an adult with FASD

  • Keeping up with the conversation with people my age

  • Finances – how to manage financial issues for someone with FASD

  • How to be on the same page when my concerns are not the concerns of the person with FASD

  • How to find healthy and engaging activities for someone with FASD

  • Use of pot for people with FASD – is it self-medicating?

  • How to get a diagnosis in Wisconsin for an adult with suspected FASD

 

Creation of a Support Group for Family Caregivers of Adults with FASD
  • Meets virtually the third Friday of the month from 1:30 – 3:00 CT
  • Potential future topics include jobs, friendships, communication, goal-setting and motivation, realistic expectations, financial, family dynamics & relationships, future planning, safe living situations, legal supports, care mechanisms like guardianship/POA for healthcare/trusts
December 4, 2020
Highlights:
  • Explored a chart for identifying the brain basis for behaviors and how we can change our responses. Discussed the importance of acknowledging and understanding the emotions of the person with an FASD in this process
  • Other discussion topics covered:
    • Developing skills to better understand and express emotions 
    • improving employer/employee relationships 
    • holding a job; 
    • self-advocacy 
    • trauma-informed therapy/yoga 
    • learning programs to help with memory and retention – suggestion included making learning fun; identifying interests and facilitating learning through them; movement oriented learning like swinging, horseback riding 
    • Looking for young adult groups for people with FASD to connect and share resources and experiences
Questions:
  • How to hold a job? How to be more (or less) transparent with employer about disability? How to voice needs with employers? Self advocacy?
  • How to improve learning skills in young children with an FASD?
  • How to acknowledge and listen to the emotions of a person with FASD as we work on behaviors with them?

 

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Orchids is a 501(c)(3) non-profit organization.

Orchids is the NOFAS Affiliate in Wisconsin.

This site is provided to families and professionals as an informative site on fetal alcohol spectrum disorders (FASD). It is not intended to replace professional medical, psychological, behavioral, legal, nutritional or educational counsel. Reference to any specific agency does not necessarily constitute or imply its endorsement, recommendation, or favoring by Orchids FASD Services.
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