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FASD is the most common preventable cause of developmental disability. An estimated 4-5% of children in the U.S. have some form of FASD, making it 2.5 times more prevalent than autism spectrum disorder.
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Fetal alcohol spectrum disorder (FASD) is often overlooked, misdiagnosed, and understudied. Individuals with FASD and their families also face persistent stigma, negative stereotypes and harmful biases, due to public misunderstandings.
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Less than 10 percent of individuals with FASD have the associated facial features — short palpebral fissures, smooth philtrum and thin upper lip. It is an “invisible disorder.”
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Many people with FASD experience lifelong functional, behavioral, and mental health difficulties.
Research shows that with the right supports, individuals with FASD can live productive and successful lives. Without diagnosis, understanding, and appropriate supports, individuals may experience less favorable circumstances such as homelessness, incarceration, or death.
FASD MONTHLY SUPPORT SERIES
Are you struggling with the numerous challenges related to FASD? You don’t have to go it alone.
Orchids is pleased to offer monthly virtual support meetings to discuss these challenges and brainstorm potential approaches and solutions in a peer discussion series.
Click here for more details and to register for the next meeting.
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FMF Study for Adults
Families Moving Forward (FMF) is working with the Adult Leadership Committee of FASD Change Makers to create an app for adults with FASD. The app, called My Health Coach, is intended to assist adults with FASD in daily life. FMF, which is simultaneously...
FASD United Family Navigator
FASD United (formerly NOFAS) has launched a new Family Navigator program to help people with FASD, their families, and their caregivers find "expert, confidential support and referrals." The program, directed by Heather French, is intended for anyone and everyone in...
Webinar: FMF Connect and Other Resources
FMF Connect is an app being developed by the Families Moving Forward (FMF) program to support parents and caregivers of children with FASD or prenatal alcohol exposure. The developers are now looking for children and families to help test FMF Connect's effectiveness....