TRANSITION

Issues:

  • Asking current providers to identify on-going needs and make referrals to continue needed services if this provider’s services have an upper age limit – identify age limits and start referral process 1-2 years ahead of age limit
  • Management of Care – identifying needs and coordinating services/providers
  • Application and eligibility for adult services – SSI, Long Term Supports
  • Residential and daily supervision 
  • Adult Guardianship – why, when, how
  • Adult self-care and safety.  Supported decision-making
  • Adult school or training programs
  • Work
  • Social skills and Community participation and safety

HEALTHCARE TRANSITION –  Caution! Following guidelines that intend to prepare youth to manage their own healthcare may NOT be appropriate or possible for many people with FASD.

  • Article written for healthcare providers for youth in transition describing best practices.

http://pediatrics.aappublications.org/content/142/5/e20182587?fbclid=IwAR1tjvbLaxiHb-5-OdF4ZUQl7lXWX0TuFNk64RD7RCyeZxXGAzhNDjwKlwg

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home   American Academy of Pediatrics – November 2018, VOLUME 142 / ISSUE 5

  • Six Core Elements of HealthCare Transition

https://www.gottransition.org/resourceGet.cfm?id=206

  • What Youth and Families need to know about transition

https://www.gottransition.org/youthfamilies/index.cfm

RESIDENTIAL AND DAILY SUPERVISION

  • Canada residential program for adults with FASD – Life’s Journey http://fasdlji.ca/
  • file:///C:/Users/Jackie/Documents/AAFASDWI/2019%20Projects/EIS_Best_Practices_Support_Youth_FASD.pdf

TRANSITION OUT OF CARE FOR FASD YOUTH

https://cwrp.ca/sites/default/files/publications/en/Report_on_FASD_Transition.pdf

https://cwrp.ca/sites/default/files/publications/en/MB-Youth_with_FASD_Leaving_Care.pdf

My Life With an FASD

https://www.mofas.org/about-fasd/living-on-the-spectrum/

Teens and Adults with FASD

https://www.mcfares.org/teensadults

(content of the McFares webpage):

  • Adult diagnosis: Improving outcomes by recognizing an FASD (Dr. Dan Dubovsky)
  • Broadening eligibility for supportive services for adults with FASD: IQ ceiling scores are antiquated and unjust
  • POV: Teenager living with FASD
  • Resources for adults living with FASD (NOFAS)
  • Social worker’s guide to working with adults with FASD
  • Independent living for people with FASD
  • Fostering interdependence (Dr. Dan Dubovsky, POPFASD)
  • Think College: College options for individuals with intellectual disabilities

TRAINING NEW STAFF

Lifeguard Strategies for Supporting Teens and Adults with FASD –  Print out pages 10-17 of this booklet and have the person with FASD circle the things they want their staff to know about them.     http://www.fasdnetwork.org/uploads/9/5/1/1/9511748/lifeguard_strategies.pdf

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